In July, One month after his open heart surgery (OHS), he still had a residual hole leftover from the patch and extra fluid around his heart. it was unclear if the fluid would go away, but he would be fine if it didn't. Still waiting for that residual hole to close.
In June, 2 months post OHS, we found out the residual hole is closed and the fluid is gone! Thank God! He is doing perfect and his chest is healing fabulously! His cardiologist appointments are going from every 2-4 weeks to 3 months. Then he will be on yearly appointments for the rest of his life.
What we are facing today-
Jaxson has been having issues at night with elevated heart rate while sleeping and nursing. This causes him to have a hard time breathing. I have also noticed that when he cries hard, his lips turn purple pretty much instantly. Yesterday, this happened 4 times. I have called his cardiologist and they said to bring him in today. Time to find out if anything is wrong.
I will be requesting a pulse oximeter for home use. It's the quickest way to know if something is wrong.
I will update after his appointment.
Until then, here are some pics of my CHD warrior!
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